Children with Diabetes
The online community for kids, families and adults with diabetes
     December 31, 2008 Volume 14, Number 52 First Published in June 1995     
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Upcoming CWD Conferences and Events
  CWD Focus on Pumping
March 6 - 8, 2009
Marriott Toronto Eaton Centre
Toronto, Ontario, Canada

  CWD Focus on Technology
April 24-26, 2009
Renaissance Chicago North Shore Hotel
Chicago, Illinois

  Friends for Life 2009 Conference and Expo
July 7-12, 2009
Disney's Coronado Springs Resort
Lake Buena Vista, Florida
View the Friends for Life 2008 Video

  Friends for Life UK Conference and Expo
August 14-16, 2009
Beaumont House
Old Windsor, Berkshire, England

Reports from recent CWD conferences & events:
-- Bethesda, Quilt D.C. 2008, Orlando, Seattle, Marco Island, Minneapolis, Toronto
-- Upcoming CWD Conferences and Events

-- Applications for the 2009-2010 Diabetes Scholars Foundation College Scholarships are now online.

The schedule for CWD's Friends for Life UK is now online.

Goodbye, 2008 -- We did so much for diabetes in 2008, but there is still work to do.

Early registration for CWD's Focus on Pumping: Toronto 2009 conference, to be held at the Marriott Toronto Downtown Eaton Centre in Toronto, Ontario, Canada from March 6-8, 2009, ends on December 31, 2008.

The 2009 Inspired by Diabetes competition has begun. Entries must be submitted by March 31, 2009. Note that for every contest entry, Lilly will donate money to IDF's Life for a Child program, which supports diabetes centers in developing countries that provide critically needed care and education for children with diabetes.

Kids from CWD's 2008 Friends for Life conference share their experiences with the ACCU-CHEK Multiclix Challenge.

Visit Diabetes Handprint to submit the word in your hand. For every word submitted, OneTouch will donate $5 up to a maximum of $250,000 for the Diabetes Education and Camping Association (DECA) to support children's diabetes camps and to Taking Control of Your Diabetes (TCOYD) to support adult diabetes conferences. See also Annoucement about and OneTouch® Teams With Online Diabetes Community To Launch Global Diabetes Handprint Project.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.

The Family Support Network now includes over 3,900 families from 50 states and 76 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 678 panels.

-- Other news and information

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.

Nothing scheduled this week

-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to [email protected]

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school

Featured Book of the Week

[RECOMMENDED!] Yes I Can! Yes You Can! by Denny Dressman and Jay Leeuwenburg. Published by ComServ Books, LLC, 2005. ISBN 0-977-42830-3. $16.95, softcover.


Being diagnosed with diabetes requires a new way of thinking. You learn about insulin, checking blood sugars, carbs, exercise -- and the importance of planning. But you don't give up your dreams, and you don't take "No" for an answer. That's the message of Yes I Can! Yes You Can!, a book about Jay Leeuwenburg, who was diagnosed at age 12 and went on to play nine years in the NFL as an offensive lineman. Written by Denny Dressman and Jay, the book alternates between Denny putting everything into perspective and Jay sharing his personal experiences, such as:

I knew from just there mere fact of going to my normal three-month doctor visits that there were thousands upon thousands of children who were seeking answers to what I thought were just basic questions about living with and managing diabetes. And they were getting such outrageous advice that I couldn't understand. For instance, 'You can't be a cheerleader. You can't play soccer.' The message was, you can't do these things because you're a diabetic. I thought it would be an injustice not to use my career and that instant celebrity as a forum. So pretty early on I made a committment that I would send the message to youngsters that, 'You know what, you can do anything you want.'

Jay's experiences and attitude can help anyone who is struggling with a new diagnosis or who is overwhelmed with caring for themselves. His experience is about persevering in the face of the challenge of diabetes and never letting it be an excuse. That's a great story for everyone. Highly Recommended.

  Order Yes I Can! Yes You Can! from the publisher
-- Other books for parents, adults, and older kids
-- Recently Featured Books

Ask the Diabetes Team
Based on my patient's laboratory results and diagnosis of type 1, can you give me a second opinion about his treatment, diet, exercise, etc.? (29 Dec 2008)
-- Answers to over 18,500 questions
-- What's your question?

From the Diabetes Dictionary
One of the three main classes of foods and a source of energy. Carbohydrates are mainly sugars and starches that the body breaks down into glucose (a simple sugar that the body can use to feed its cells). The body also uses carbohydrates to make a substance called glycogen that is stored in the liver and muscles for future use. If the body does not have enough insulin or cannot use the insulin it has, which are the basic problems in most forms of diabetes, then the body will not be able to use carbohydrates for energy the way it should. Sometimes abbreviated CHO. See also Fats; protein.
-- More definitions

Surveys and Studies
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Nemours is running a survey of parents of kids (up to age 18) with type 1 diabetes to understand how they learn about the potential long-term health risks of diabetes.

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

Adult males with type 1 diabetes are needed for a study about Benfotiamine and Complications in New York.

A study on Autoantigen Vaccination In Human Type 1 Newly Diagnosed Diabetes Mellitus is seeking adults 18-35 who have been diagnosed with type 1 diabetes mellitus less than three months.

-- Other Studies

Diabetes Humor
My non-D daughter was writing with a mechanical pencil and constantly having trouble with the lead (the kind you insert at the writing point of the pencil). She said, "Mom, this pencil needs a new lancet!"
-- More Humorous Tidbits

You know you're a parent of a child with diabetes when ...
... you clean the lint trap of your clothes dryer and find a bunch of test strips.
--More Parent Humor

Living With Diabetes

-- More children with diabetes

Hi, my name is Ashton. I was diagnosed with Type 1 diabetes on May 18, 2007. I live at home in Illinois with my Mommy and Daddy. It all started when Mommy and Daddy noticed a big change in the amount of liquids I was drinking and the number of diapers they were changing. That went on for a couple of days and then I was waking up in the morning soaked from head to toe (I think Mommy was getting mad because she had to keep washing my sheets).

So then Mommy and Daddy decided something wasn't right, they called the doctor. The nurse Mommy had talked to recommended bringing in a urine sample. So that night she took in a sample to the lab and the next morning she received a call from the doctor that they needed to take me in to get blood work because they said they did see some sugar and they wanted to make sure with the blood work. We then went to the doctor's office to wait for the results. When doctor walked in the room Mommy and Daddy knew right then it was diabetes. They broke down into tears and just hugged me so tight I really didn't know what was going on. So my doctor sent us to Peoria St Francis where I could get the treatment I needed.
-- Visit Ashton's page


Become part of the CWD Quilt for Life

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Current Poll

  Which one of the following innovations do you think is most likely in 2009?  

Continuous glucose sensing in general use


Closed loop sensing and insulin pumps available


A breakthrough in islet cell transplantation


A breakthrough in halting the autoimmunity


A breakthrough in finding the cause of type 1


Something else


No real change from today



Poll Results


Which one of the following innovations do you think is most likely in 2009?


Continuous glucose sensing in general use





Closed loop sensing and insulin pumps available





A breakthrough in islet cell transplantation





A breakthrough in halting the autoimmunity





A breakthrough in finding the cause of type 1





Something else





No real change from today




-- View Results & More Polls

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Find US Schools By
Blood Testing Rules

Find schools where blood testing is allowed

Restrict to schools with the following ZIP Code

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Recommended Books

Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Become an expert in
your own diabetes
Buy at

Living with diabetes
and as a parent
Buy at

The Adventure of A Lifetime
Buy at The Diabetes Mall

NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher

Always remember that kids with diabetes are still kids

Last Updated: Wed Dec 31 13:32:01 2008
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